Amanda Michelle Jones

Amanda Michelle Jones, Ph.D. student, has stage IV endometriosis. Endometriosis is a painful gynecological condition that directly impacts the uterus, ovaries, bowels and other aspects of the pelvic region, according to the Mayo Clinic. The tissue lining the uterus spills out. The endometriosis tissues still operate normally during menstrual cycles, causing intense pain for those affected.

Endometriosis can also cause fertility issues and have long-term health impact. Jones, a self-identified “connector of people and resources” was diagnosed with the condition after an ovarian cyst led to an emergency room stint. A subsequent surgery uncovered advanced issues, including the fusion of Jones’ colon to her uterus and her cul-de-sac, the cavity between the rectum and the uterus.

The blogger has been assertive in seeking treatment. Her initial surgeon called her stage four endometriosis the worst case she’s ever seen. Jones writes in a blog post:

There were implants all over my pelvic cavity – on all my organs except my stomach & appendix. While the doctor was able to clean me up, she could not do anything about the endometriosis on my organs or about anything that’s fused together. I also have a cyst on my uterus. She couldn’t remove that, either, not due to impossibility, but due to her own comfort level. I appreciate her not experimenting in my pelvic cavity.

Rather than losing hope, Jones enlisted the assistance of Camran Nezhat, MD., a leader in progressive fibroid and endometriosis alternative treatments. Jones, a second-year social work Ph.D. student, reached out to Dr. Nezhat through Twitter and submitted her medical records to him through email and through the hospital where she had her initial surgery.

Dr. Nezhat has agreed to perform the surgery. However, the endometriosis surgery is expensive. Some of Jones’ expenses include traveling from Chicago to California to visit Dr. Nezhat’s clinic, hotel, travel expenses and a vehicle to transport Jones from the hospital to the hotel.

She has launched a HopeMob campaign to raise $5,600 before her surgery in June. There are 14 days left to donate to Jones’ campaign. Even if you are unable to donate, Jones’ has words of advice for all women: Go to a gynecologist if you have painful periods and have your hormone levels checked.

“This means a full thyroid panel, testosterone, progesterone, estrogen, & cortisol,” she writes in an interview. “Unfortunately, most GYNs aren’t interested in doing that, which is why I went to Marcia Scoville. She specifically focuses on bioidentical hormone replacement, creating customized courses of care for each patient as an individual. It’s hard to find a BioHRT specialist who isn’t gimmicky, but it’s worth the search!”

You can donate to Jones’ campaign through HopeMob and send messages of support through Twitter.

  • Sharon Lowd

    Thanks “cosmicsistren”, but I expected it. My comments were not meant to be offensive or condescending – they’re just my personal opinions, that’s all. I know most of what I feel is based on the generational differences between Ms Jones and myself. It’s just that most people my age and maybe a little younger would first contemplate what they could do on their own. I’m so confused – it’s as if I told her to go pick cotton. When did it become wrong to handle your own business – when did it become wrong to postpone something? I must be missing something, because they really went after me. I know the economy is bad and I know it’s difficult to get a job with benefits but that does not change my feelings. What I find truly amazing, is the fact that my infertility issues and the fact that my husband has prostate cancer is just a non-issue – apparently nothing else matters as long as Ms Jones finishes her Ph.D. I have no problem with the jobs I’ve had, it’s my life’s history. Degrees guarantee nothing – I have 2 relatives with at least 2-3 masters degrees – they’re both broke as hell, miserable and unhappy – because they both thought that “degrees” would open up any and all opportunities; they’re both resentful and I’m pretty sure that their resentment shows up in their attitude when they interview for jobs. There are many people (my self included) working to make the world a better place, and our efforts are no less important because we do not have Ph.Ds. Even if I choose not to contribute, I still have a voice and I will not be silenced because I am not a part of the majority. As I said before, I wish Ms Jones the best – I know pain – before I medically retired I worked for about 7 years while suffering from degenerative arthritis. I used to sit in my car and cry everyday before I went in to begin my day; I would load up on my pain meds and then pray that they would last through my shift. My doctor/surgeon told me that he would do surgery when I could no longer stand the pain and even after retiring I waited another 4 years because there are others in my family that needed me here and recovery would involve several weeks of physical therapy. Life is hard and you do what have to do and you do what’s best for you – everyone is different and I can accept that without resentment and anger – CAN YOU? Thanks again “cosmicistren”.

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